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Review
"A superb account of how a controversial technology becomes normalized patient by patient. While following families from newborn screening to post-Cochlear implant, Laura Mauldin shows that little of the political turmoil related to this medical technology is salient for the parents faced with a child with hearing loss."—Stefan Timmermans, University of California, Los Angeles"Dr Mauldin is a talented writer who offers keen insight in several areas where practitioners can improve."—Journal of Deaf Studies and Deaf Education
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About the Author
Laura Mauldin is assistant professor of human development / family studies and women’s gender and sexuality studies at the University of Connecticut.
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Product details
Series: A Quadrant Book
Paperback: 230 pages
Publisher: University of Minnesota Press; 1 edition (February 29, 2016)
Language: English
ISBN-10: 0816697256
ISBN-13: 978-0816697250
Product Dimensions:
5.5 x 0.9 x 8.5 inches
Shipping Weight: 14.9 ounces (View shipping rates and policies)
Average Customer Review:
4.3 out of 5 stars
18 customer reviews
Amazon Best Sellers Rank:
#130,985 in Books (See Top 100 in Books)
I'm deaf and I work within the Early Hearing Detection and Intervention system. This book was by far the most illuminating narrative I've read about how families of children that are deaf or hard of hearing born today are immediately put on a track for oral/aural and auditory habilitation and presumed cochlear implantation. Not only did this book describe the process parents undergo (yes, one downside was the small and limited number of families that were followed for this book), but Mauldin most importantly helped me understand the socio-cultural and medical narrative perspectives of deafness and essentially why there is such a divide in the long-battled positions of proponents of oralism and those of a Deaf identity and use of American Sign Language (ASL). I like how Mauldin clearly outlines her biases upfront and describes her structured and anthropology-based approach in documenting and capturing this unique cross-section of how modern medicine and technology interacts with both mainstreamed and minority cultures. A must read for anyone in the EHDI field, Universal Newborn Hearing Screening state programs, Audiologists, Speech and Language Pathologists, Deaf Educators and parents alike.
This book has really helped to open my eyes to the perspective of members of the Deaf culture about cochlear implants and the decision to implant very young children. The CI industry may not have been as altruistic as hearing people might think. The industry is just that and is very profitable. Professionals really need to be supportive of family's decision making on implantation. Reading this book has helped me to see this more clearly.I still support implantation for children, but there is lots of things that families need to consider and they should be supported with being fully educated on the pros and cons of ASL and oralism. One is not THE answer, in my opinion.
This book is a great resource for people who are familiar or unfamiliar with the competing narratives of deafness: the medical narrative to support the need for a miracle cure and the socio-cultural narrative that emphasizes the linguistic and cultural rights of the Deaf community. The author did a wonderful job in summarizing the complicated narratives in her introduction, but she made an important (and controversial) point that the readers should take note: both narratives reject disability as one attribute that falls out of the acceptable range of human diversity. The medical narrative may make sense in this case since the goal is to rehabilitate people and bring them closer to the norm; but with the socio-cultural narrative, deafness is seen as part of human diversity but not as a disability since deaf people have a community, a history, and a language in order to function as human beings. The socio-cultural narrative is useful for the Deaf community to frame their reality this way so they can maintain their culture and language against the oppressive nature of audism, but by rejecting their connection with disability, it does very little to support the reality that disability studies scholars, activists, advocates, and allies involved in the disability rights movement have been pushing for decades: that disability is also part of human diversity and that the society must end its oppression and discrimination of people with disabilities. This is especially important because about 90% of deaf and hard of hearing people with or without additional disabilities were born to hearing families (meaning family members who are not deaf and not familiar with sign language and Deaf culture) and the majority of these families typically do not question the ableist ideology that having a disability (including deafness) make their children different (read: not normal) and they must do something about it. This is what the book is about: hearing parents who unexpectedly bear deaf children who are not like them and they need support and guidance from people who supposedly know best - the medical professionals on hearing loss and speech and hearing rehabilitation. What I appreciate about this book that the author doesn't put anyone in a negative light or paint the medical professionals as the enemies of the Deaf community. Everyone in the book seem to be sincere in their attempts to provide the best future for deaf children. What the author is trying to point out is that the ideological intersection of gender-specific parenthood, ableism, medicalization, and technology defines what it means to be "normal"; it explains why people do the way they are doing when it comes to children with their hearing abilities that do not fit with the norm. The book does contain its limitations as the author discusses in her introduction: it follows a small number of families and all of the medical staff in the book are at one medical center in New York City. It may not represent the majority of the families in the rest of the country and the world, but it offers useful and honest insights on the reality that the families and their deaf children with cochlear implants are going through today.
I highly recommend this book as someone who was deafened at 2 from an illness, raised oral, using sign language in a school for deaf, attending mainstream, schools as the only deaf person without any formal support services, attending universities and finally using access services. I'm a profoundly deaf whom hearing aids were of no use and currently use a cochlear implant. I'm also fluent in ASL as a fifth language and I'm a foreign born but my deafness didn't prevent me from mastering English as a foreign language. I find it sad about division between oral and signing cultures and feel that everyone needs to get along. As a deaf adult, I believe in using all communication options whenever possible and not limiting to just one.
An absorbing view of people regarding cochlear implants for children, their mindsets, goals and hopes. It challenges the medical viewpoint that a cochlear implant is a standard treatment for deafness, because it is much more complicated than that. As no two individuals are alike, nor are their families, the results of CI surgery are variable. To be taken into consideration are the expectations of the parents, their social environment and preconceptions, their inner feelings of guilt and acceptance, and their reasonings for subjecting their children to surgery. Since nothing is guaranteed in any major decision concerning children, well-informed parents need to also examine their motivations and weigh their options as well as that of their children. Also examined are the preconceptions of society in general as well as those of doctors.
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